Hey Disney Fam,
So I’ve been attempting to do this video for a while because I wanted you to be informed and I think stating the facts out loud also solidifies what’s going on. Our baby has something called Transposition of the Great Arteries (aka TGA) and will require open heart surgery shortly after she’s born. Here is our diagnosis, story, and just overall thoughts on what’s happening. Be gentle, as this was a difficult video to make.
I appreciate it. xo Allison
On a happier note, here are some of my favorite Disney Related videos 😍:
DISNEY BABY NURSERY // https://youtu.be/mrmzyniDNGM
INCREDIBLE DISNEY PINS// https://youtu.be/4ZhjN8I5Eo8
FOOD ALLERGIES AT DISNEY// https://youtu.be/wF1W5GvBXB8
ALL ABOUT DISNEY PIN TRADING// https://youtu.be/0hcQnES4Kqg
Join my Disney Family, come find me on social media! ❤️ 📱 ✨
💻 Facebook: https://www.facebook.com/allisonwdwgirl/
📷 Instagram: https://www.instagram.com/iamwdwgirl/…
😍 Pinterest: https://www.pinterest.com/allisonwdwg…
🎬 Snapchat: Allie8573
38 thoughts on “OUR BABY’S DIAGNOSIS | CHD AWARENESS // WDWGIRL”
That’s tough news. Thanks for sharing. I will be keeping all of you in my prayers. I know Rosie will be in good hands! I don’t know you personally but I’ve enjoyed getting to know you through your videos, and I know Rosie has a wonderful mom 🙂
BippityBoppityGal Thank you so much! We definitely appreciate all the prayers and good thoughts our way. We definitely can’t wait to meet our girl and introduce her to you guys too! ❤️
Allison WDWGirl I can’t wait to see her! 🙂
Oh Allison, I’m sending positive thoughts and prayers your way ❤️ Rosie is so lucky to have you and your wife as her rocks through this challenging time in her life! I wish you the best of luck during these last couple of weeks during your pregnancy ❤️ You got this mama, and so does Rosie ❤️ -Rawan
Thank you so much, Rawan! I've so appreciated everything you've done for me. You are such a special part of my Disney community and i couldn't do it without you!
I love your explanation, your humility and your faith and heart. Thank you for sharing. Thanks for advice.
Thank you!
Allison, thank you for sharing Rosie's CHD story. You take care of YOU right now. I have been keeping your whole family in my prayers. I'm so happy for your support of your parents and Leanne…lean on each other. Cry. Hold hands. Just breathe. And consider journaling. I did that in the NICU because there's a lot of waiting time and I am so grateful for that notebook that kept every sight, sound, memory that I could capture in writing. Rosie already knows this, but she is blessed to have the three of you by her side. All my love to you.
Thank you so much and journaling is a wonderful idea. I've actually kept a journal since the beginning for both of the girls and I will definitely continue to through her birth. And thank you for all your support, seeing you with your HW has helped me so much!
Allison WDWGirl I'm here for you. 😘 Wish I could give you a hug.
Thinking about your sweet family, and you are in the best best care possible, she has a great family and is so lucky to have you guys <3
Thank you so much!
I've been starting and stopping this video all day because I really wanted to give it my undivided attention and can't do that with interruptions. I just finished watching. I just want to tell you Thank you. Thank you for sharing your story, Rosie's story. And for sharing your emotions even though they are so raw and it may make you feel vulnerable. That must not have been easy. Also, I'm here for you in whatever way I can be useful. 💕
Thank you! You have definitely been an anchor during this entire process. I appreciate your friendship and support!
Likewise! And you're welcome 🙂 Thank you for your friendship!!!
So strong to share your story. Sending pixie dust and happy thoughts!
Wow. Glad you shared this. I know it wasn't easy. We will be praying for the whole pregnancy and delivery and for the best outcome with the surgery as possible. Glad you have family around to be with through all this. May you find the strength and peace to go through all this and and have a happy baby living life to the fullest. (Michael)
Thanks for sharing. Hoping for the best. Will send prayers your way. My nephew was born with a version of Congenital Heart Defect called HLHS (Hypoplastic Left Heart Syndrome) where his left side of heart does not work properly and he also was born with a small hole in his heart.
He's had 1 surgery to fully fix his hole & multiple surgeries to help with the left side of his heart (HLHS) and is going to have another done soon.
So far he's gotten through them all with no issue. He can run, walk, play, laugh, talk like most people in this world. If one never gets told he had HLHS, no one could easily tell. He looks and acts like what most would consider a normal child his age would look and act like.
He's strong and a normal near 4 year old now. It may be hard, but I've seen it in person, with proper prayer and love shown, things can go well. Faith can go miles
I have faith that GOD and Gabriel will watch over your family and help each day go as smoothly as possible.
Only good news I feel I can give..with seeing heart & brain issues in my family, heart issues seem, at least to me, to have easier surgeries for child to go through and I feel they are easier to handle than brain issues like Gabriel had.
There is a reason GOD chose you to care for this special angel of his and us to care for the special angel he sent our way.
Sending prayer to you and your family. Have a blessed day and the most enjoyable time possible during the rest of your pregnancy and have lots of fun and make loads of memories when Rosie enters physically into the open world.
We are here if you need anyone extra for support or to talk to.
Thank you for sharing. I will be thinking of you.
I love you, sister ❤️
Hi Allie, I just watched your video and appreciate it so much. As other of your wonderful subscribers have mentioned, your honesty draws us all in and makes me feel like you are talking to each one of us personally. That must have been so hard, but thank you for doing this video. It will bring lots of prayers and love toward you and your sweet sweet Rosie. Know that the Joss family in Seattle is thinking and praying for you and your baby. You are a true friend, a great wife and a phenomenal mom! I couldn't be prouder of you!! Love you Allie Wallie!!
Keeping you in thoughts and prayers <3
Thank you for sharing your story. Sending prayers and positive thoughts to Rosie, you and the rest of your family.
Found your channel last week and love it!! Thank you for sharing, I can't imagine how difficult it was to sit down and film this video. Stay strong for your baby girl…sending prayers, hugs, and pixie dust!!
Thank you so much and I'm so glad you've joined my Disney fam 🙂 We are hanging in there. Her surgery is tomorrow so we appreciated any and all pixie dust sent our way! xo Allison
I didn't start following you until after this video and am just floored and how blessed Rosie is to have two amazing moms that love her so amazingly well. Thanks for sharing this – wow, being a parent really is the hardest thing that I'v ever done and I could so feel your heart in this video. Hugs to you, Friend!
Jen Lefforge I ADORE YOU! I am so glad I met you and cannot wait for your Disney trip ❤️❤️❤️
This was so inspiring to watch. It's so great to know your story and your family's story. I had a hole in my heart when I was born, but it closed up before I was a year old thank God. I LOVE seeing Rosie now, knowing that you can take her to Disney and that she is the little sister that Ruthie needs. I think this is a great video for anyone who is going through something similar with their pregnancy. You have a lot of heart and you are so brave to share your story!
Just found this video. I had that same moment. My toddler, Luca, has a complex TGA. He is 2 and has had 3 open heart surgeries. He is the most vibrant, loving little guy! It has been hard, but he is beyond perfect! And I agree! He is and will become who he is meant to be because of his CHD!
Thank you so much for sharing your story with me ❤️ May I ask which surgeries Luca got? Rosie had a balloon septostomy and then the arterial switch. She had very interesting anatomy which while she did end up with TGA she actually did about half way on her flip (where normally they don’t make the last flip). She had both a VSD and ASD as well as sub pulmonary stenosis but so far she’s doing amazing! She’s nine months and has been crawling since 6 months! She pulls up on furniture and says mama and hi. She’s the happiest little girl and you’d never know her rough start. I’m so happy he’s doing so well. Our kids are fighters for sure. You can actually see a lot of her in the vlogs starting in June. Thank you so much for commenting and I hope you’ll stick around! Xo Allison
I'm just watching this for the first time right now, and what's beautiful is seeing how happy and healthy Rosie is! I appreciate your courage and vulnerability in sharing this❤️ You two are incredible moms!
Thank you so much, Megan. I always wonder how much to share and I’m finding people enjoy knowing more in-depth pieces of our lives (beyond Disney). Comments like this make me feel like sharing is important so I really do appreciate it ❤️❤️
Hi I’m Emily! I was and still have CHD, and it’s rough to live like this, but it will be ok.
Hi Emily!Thank you so much for responding. An update on Rosie: She is doing wonderful! She has no limitations and now will be seen yearly. What CHD do you have? Thank you for commenting! -Allison
My son has this and other defects im so sorry yall have to go through this
Watching this sitting in the parking lot of the pediatric cardiologist. My daughter was born 8 days ago and has a hole in her heart. Because of covid only my husband could go into the cardiologist. Trying to not worry until I need to. Seeing your emotions but also knowing now how well functioning your daughter is and how successful the surgery was just helps me stay confident in modern medicine. Thank you for sharing your story, I am so glad Rosie is now such a healthy strong little girl.
I’m so sorry you’re dealing with this right now. Babies are amazing and resilient and your baby is too. I’ve got your in my thoughts; hang in there 💕
@AllisonMertzman thank you, I so appreciate it. Love watching your videos with your sweet family.